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Dr Suzanne Nevin

Dr Suzanne Nevin

Research Associate
Medicine & Health
School of Clinical Medicine

Suzanne Nevin is Post-Doctoral Research Fellow in the Discipline of Paediatrics, School of Clinical Medicine, Õ¬Äи£Àû Medicine & Health and Sydney Children’s Hospital, Randwick. Suzanne completed her has a Bachelor of Psychology (Honours) and her PhDÌýat the School of Clinical Medicine,ÌýUniversity of New South Wales. Her PhDÌýfocussed on co-developing evidence-based positive psychology resources to improve psychosocial outcomes among families and children living with severe neurodevelopmental conditions.

Suzanne's research interests surround advancing clinical practice in complex childhood illnesses, with a particular focus on co-developing patient-centred resources for families and children living with rare genetic conditions.Ìý
E-mail
s.nevin@unsw.edu.au
  • Journal articles | 2024
    Ha L; Nevin SM; Wakefield CE; Jacovou J; Mizrahi D; Signorelli C, 2024, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship,
    Journal articles | 2024
    Innes EA; Marne FAL; Macintosh R; Nevin SM; Briggs NE; Vivekanandarajah S; Webster RI; Sachdev RK; Bye AME, 2024, 'Neurodevelopmental outcomes in a cohort of Australian families with self-limited familial epilepsy of neonatal/infantile onset', Seizure, 115, pp. 1 - 13,
    Journal articles | 2024
    Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O’Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, 13, pp. 674 - 682,
    Journal articles | 2023
    Nevin SM; McGill BC; Kelada L; Hilton G; Maack M; Elvidge KL; Farrar MA; Baynam G; Katz NT; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield CE, 2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18,
    Journal articles | 2022
    Bye AME; Le Marne FA; Beavis E; Macintosh R; Nevin SM; Palmer EE; Sachdev R; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope', Journal of Paediatrics and Child Health, 58, pp. 1726 - 1728,
    Journal articles | 2022
    Nevin SM; Beavis E; Macintosh R; Palmer EE; Sachdev R; Le Marne FA; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty', Journal of Paediatrics and Child Health, 58, pp. 1722 - 1725,
    Journal articles | 2022
    Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104,
    Journal articles | 2022
    Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', PEC Innovation, 1,
    Journal articles | 2022
    Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, 37, pp. 129 - 138,
    Journal articles | 2022
    Palmer EE; Sachdev R; Beavis E; Macintosh R; Le Marne FA; Nevin SM; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty', Journal of Paediatrics and Child Health, 58, pp. 1718 - 1721,
    Journal articles | 2022
    Robertson EG; Kelada L; Best S; Goranitis I; Grainger N; Le Marne F; Pierce K; Nevin SM; Macintosh R; Beavis E; Sachdev R; Bye A; Palmer EE, 2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: A mixed-method pilot study protocol', BMJ Open, 12, pp. e063249,
    Journal articles | 2022
    Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, 24, pp. 535 - 548,
    Journal articles | 2021
    McKeon G; Palmer EE; Macintosh R; Nevin SM; Wheatley L; Rosenbaum S, 2021, 'Feasibility of a mental health informed physical activity intervention for the carers of children with developmental and epileptic encephalopathy', Epilepsy and Behavior, 121,
    Journal articles | 2020
    Gleeson M; Kentwell M; Meiser B; Do J; Nevin S; Taylor N; Barlow-Stewart K; Kirk J; James P; Scott CL; Williams R; Gamet K; Burke J; Murphy M; Antill YC; Pearn A; Pachter N; Ebzery C; Poplawski N; Friedlander M; Tucker KM, 2020, 'The development and evaluation of a nationwide training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients', Gynecologic Oncology, 158, pp. 431 - 439,
    Journal articles | 2020
    Nevin SM; McLoone J; Wakefield CE; Kennedy SE; McCarthy HJ, 2020, 'Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences', JOURNAL OF PEDIATRIC GENETICS, 11, pp. 117 - 125,
    Journal articles | 2020
    Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE; Gok C, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382,
    Journal articles | 2017
    Nevin SM; Vartanian LR, 2017, 'The stigma of clean dieting and orthorexia nervosa', Journal of Eating Disorders, 5,
  • Preprints | 2023
    Nevin S; McGill B; Kelada L; Hilton G; Donnell M; Elvidge K; Farrar M; Baynam G; Katz N; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield C, 2023, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, ,
    Conference Papers | 2020
    Meiser B; Gleeson M; Kentwell M; Do J; Nevin S; Taylor N; Barlow-Stewart K; Kirk J; James P; Scott CL; Williams R; Gamet K; Burke J; Murphy M; Antill Y; Pearn A; Pachter N; Ebzery C; Poplawski N; Friedlander M; Tucker K, 2020, 'The development and evaluation of a nationwide training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 62 - 62,
    Conference Abstracts | 2019
    Nevin S; Claire W; Kennedy S; McCarthy H, 2019, 'MON-311 The Psychosocial Implications for Patients and their Families of Introducing Genomic Testing into Mainstream Paediatric Nephrology', in Kidney International Reports, Elsevier, Vol. 4, pp. S426 - S427, presented at Kidney International Reports,
    Conference Papers | 2018
    Antill Y; Barlow-Stewart K; Friedlander M; Meiser B; Do J; Nevin S; Gleeson M; Kentwell M; Tucker K; Taylor N; Kirk J, 2018, 'Changing a nation: The development and evaluation of a training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients.', in INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER, BMJ PUBLISHING GROUP, pp. 202 - 203,

2019 - 2023, University of New South Wales International Research Scholarship (TFS).Ìý

2019 - 2022, Luminesce Alliance - Innovation for Children's Health PhD Scholarship, funded by Paediatrio and the Office for Health and Medical Research, NSW Government.

2021 - 2022, Recipient of the Sydney Children’s Hospital Network Early Career Researcher Award.Ìý

2021, Recipient of the Õ¬Äи£Àû School of Women’s and Children’s Health, Excellence in Higher Degree Research Award.Ìý

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